"As long as I started in Cai Lei, you all failed me. Because I don't want to die, if you die, you lose. " This is what Cai Lei once told his competitors, and now he still won't give in.
"Either die or get rid of this disease." Cai Lei said.
They all say, "Rhapsody in July is a flower." Before the disease was discovered, Cai Lei was an almost abnormal workaholic. As the vice president of JD.COM Group, the president of "Internet Plus Finance and Taxation" Alliance and the promoter of electronic invoices in China, he has become the ideal appearance of many mature men.
Because of this rare disease, Cai Lei directly changed from a winner in life to a terminally ill patient, and was sentenced to death at the peak of his career. However, as a business strongman, he doesn't seem to have the habit of giving up. He chose to fight to the death, just like in business, only this time his opponent is death. How will Cai Lei choose to respond? What progress has he made now?
This rare disease is called gradual freezing, which many people may hear for the first time, but when it comes to Hawking, many people may know that he has gradual freezing. This disease can slowly "freeze" the body, but not the mind. This is also one of the most terrible places of this disease.
Imagine that when your body is touched, you can feel it clearly, but you just can't control your muscles to react through your brain. Later, you can hear what others say, but you can't make any expression, and your mouth can't make any sound. How helpless should people be at this time?
Some people say that today's drama is a bit like Lu Huizi in Dying for Survival. Although terminally ill, he still fought bravely against the disease.
02
Cai Lei's hometown is a small town in Shangqiu, Henan. His father is a soldier. Because he was clever as a child, he often got the first place in exams. Some students call him an "alien". However, as a child, Cai Lei is not sociable and has few friends. Because of poverty, Cai Lei often wore patched clothes when he was a child, and even toys could only be picked up by others.
Until the second year of high school, Cai Lei took the college entrance examination in advance and was admitted to the Central University of Finance and Economics. However, Cai Lei was depressed for a period of time because he failed to choose his favorite physics major. After graduating from college, Cai Lei went to work in an organization, but his first girlfriend chose to leave him because of his low income. So in order to prove himself, he jumped ship and went to a foreign company. Although the income has increased, the time has decreased.
In 2003, Cai Lei was the tax manager of Samsung Group's China headquarters. Later, he successively served as the tax manager and chief tax agent of Amway (China) and Vanke Group.
By 20 1 1, Cai Lei began to realize the great potential of the Internet, so he decisively reduced his salary from the top of Vanke Group and moved to JD.COM. At that time, JD.COM was still in the early stage of entrepreneurial development, but he valued the potential.
Today, JD.COM has been rooted in JD.COM for ten years and has made great achievements. In addition to Liu's painstaking efforts, he was also named "Top Ten Financial and Tax Figures of the Year" and "China's Reform Hero" on 20 18, and he also served as an off-campus tutor of Peking University, Tsinghua and Academy of Social Sciences. Without this disease, it can be said that Cai Lei is the winner of life in the secular sense.
20/kloc-in may, 2008, Cai Lei, who had been single for many years, finally met the other half of her life. The girl is a Beijing girl, younger than Cai Lei 1 1 year.
When they met for the second time, Cai Lei chose to propose. Facing the startled opponent, Cai Lei made a simple explanation. He has no time to fall in love. Since it suits each other, let's get married. "If you feel wrong, don't waste each other's time."
The girl also became interested in this man, because before meeting Cai Lei, she was also a boring person in others' eyes, and they can be said to have similar views. So they decided to get married after knowing each other for about a month, and soon they had a son.
At this point, Cai Lei is full of ambition and high-spirited. Not only a successful career, but also a virtuous wife and sensible children at home. His wife is younger than him 1 1 year old, which can be said to be a double harvest in love career and a standard winner in life.
03
Something unexpected happened in the sky. Maybe God was so jealous of him that he gave him a big "joke".
In fact, on August 20 18 in Cai Lei, some physical abnormalities were found: the muscles of the left arm often beat, but Cai Lei, as a workaholic, had no mind to pay attention to these "small problems" at all.
At that time, he was in a critical period of his career. Perhaps in his view, it is harmless to have some minor physical problems because of high-intensity overtime and work. Just take some medicine. However, there is no time to wait in the mall. He didn't pay attention to it at that time. This is actually the same as many "desperate" migrant workers.
Until the following February, the muscles in his arm began to beat constantly. He tried to control it, but it still didn't work, so he had to ask for leave to go to Peking Union Medical College Hospital.
The doctor told Cai Lei that the disease was called ALS (amyotrophic lateral sclerosis). As a motor neuron disease, the etiology is unknown and there is no cure, which is what we understand as gradual freezing, and it can also be said to be a terminal disease. Because once the patient is diagnosed, his life can start counting down.
The doctor advised him to be hospitalized. But Cai Lei said, "In the hospital? How can I have time? " So regardless of the doctor's advice, Cai Lei quickly returned to work.
In fact, for Cai Lei, time is simply not enough. He knows that time is life. At work, he was busy for four days and four nights for an electronic invoice project and didn't sleep a wink. For him, staying up late in the company is just one of his daily jobs. He once said to his former opponent, "As long as I start in Cai Lei, you can't do it. Because I don't want to die, if you die, you lose. "
At first, Cai Lei may not have realized the horror of gradual freezing. Generally speaking, patients will gradually lose their mobility within two to five years, just like being slowly frozen, until they finally end up in the pain of respiratory failure.
Perhaps before the diagnosis, Cai Lei had made a certain judgment on his physical condition, but like many people, he felt that he had enough economic background at that time, and with the current medical level, it should be no problem to have money.
What he didn't expect, however, was that money couldn't buy medicine for this disease, so in the next time, with the gradually frozen sword hanging overhead, Cai Lei felt that time was running out.
At the end of September this year, Cai Lei came to Tiantan Hospital affiliated to Capital Medical University and had a full-body PET-CT examination for more than three hours. In this way, all the sectional images of the patient's body can be obtained, which is also helpful for doctors to judge the progress of the disease.
Cai Lei in the hospital is no longer an all-powerful business figure, but a patient who needs to obey the doctor's arrangement. At this point, Cai Lei's left hand is out of control, and it can only hang feebly below. He can only feel a soft rebound to the touch and can't make other reactions.
At the entrance of the examination room, Cai Lei's coat slipped disobediently many times. He tried to support his clothes with his left arm, but he stepped back because he was unable to do so. At this time, he even needs the help of an assistant to get dressed.
On September 20 19, when Cai Lei was diagnosed, the doctor drew a distance of about 20 cm in front of Cai Lei, telling him that "the survival time of this disease is probably so long", and then put his hands together, leaving only a small piece, "Your life is still so long."
In the face of such a bolt from the blue, Cai Lei once filed for divorce with his wife, and he didn't want to drag the newly-married wife down.
But what his wife saw was not only the superficial meaning of this sentence, but the confidence in Cai Lei's words. So she firmly replied to Cai Lei: "Don't even think about it!"
But what's the use? Cai Lei's wife, who is also a medical student, clearly knows that it takes a long time to develop and market a drug. Especially for the specific drugs for rare diseases, due to the limited buyers and low return on investment, it is more difficult for investors to invest in research and development costs, so they can only find their own ways.
Facing the husband who needs to take care of and the son who grows up day by day, the wife also begins to feel that life is difficult. She once said: "It is not important to get out of despair. More often, we may learn to live in despair. "
He began to try to use his own strength to invest in the research and development of drugs for gradually frozen people, and also set up a mutual aid home for gradually frozen people, with the aim of establishing a mutual aid platform for countless patients with gradually frozen people like himself.
Through contact with thousands of patients and in-depth communication, Cai Lei finally got a series of accurate data, which is undoubtedly a good thing, but there is still no breakthrough.
04
It's just when you watch patients die one by one! 43-year-old Vice President JD.COM once cried.
As a business elite, he tried to convince investors with his own business logic, and then strive for resources for himself and his patients to fight against the disease, because he felt that most of the patients with this disease were people aged 40-60, who were the backbone of the family and society and had the ability to pay for it.
But in the face of this statement, basically all investors are not optimistic, and some even say that I will give you a sum of money, have a good rest and stop tossing. Faced with a heavy blow, Cai Lei, who has always been strong, finally shed tears, but unwilling, he did not give up.
So after this gradual freezing, is there really no cure?
At present, there is only one medicine in the world called "Lirutai". Although it is expensive, it is not a problem for Cai Lei. What really bothers him is that even if he takes this medicine, it can only delay the process of gradually freezing people, and there is no way to stop the development of the disease and reverse the symptoms of gradually freezing people.
It can even be said that Cai Lei has an incurable disease. However, in the face of such adversity, Cai Lei, who has always been strong, did not give up treatment and enjoy the rest of his life in the following time, as many people imagined. If so, he wouldn't be Cai Lei, and he wouldn't be him now.
Because in the face of such a terminal illness that you need to watch yourself die step by step, but you can't stop it, every patient with gradual freezing needs to face that kind of desperate powerlessness, and Cai Lei's initial intention in making this platform is to give everyone a positive guidance through his own disease-resistant experience, instead of just lying in a hospital bed and waiting for death.
At a medical and health forum attended by Cai Lei, Cai Lei talked enthusiastically about his experience of fighting the frozen people in the past two years, and avoided the slightest failure.
At this time, Cai Lei is really not like a patient, except that people around him need to help him unscrew the bottle cap of mineral water and hang a mask.
Until the end of a hasty trip, Cai Lei sat in the car and began to gasp. "I'm really tired." At this time, Cai Lei has begun to feel powerless about his physical strength.
However, instead of taking a rest, he slowly replied to hundreds of messages on his mobile phone with his trembling right hand and voice input tools. For him before, being busy was a normal state, but at this time it was so difficult. However, this is much better than when I worked full-time. Because of illness, Cai Lei can finally go to bed early.
05
Now he has made a will, but the most important thing is to continue fighting and continue to fight the disease. Now he will say to his children, "Son, this disease is your revenge for killing your father. You have to report it! " It's just that he doesn't even have the strength to hug his son.
For Cai Lei, all we can do is silently regret and bless. We also want to remind everyone that whether you are in a high position or under great pressure, you must pay attention to your health. After all, your health is the capital of the revolution. Without a good health, all your efforts will be in vain.
The most important thing is that it is not terrible for a person to be sick, but it is pain for his loved ones to suffer! This is the helplessness and deep fear of middle-aged people. what do you think?